Resources for living with dystrophic epidermolysis bullosa (DEB)


With Krystal Connect, you are not alone on your DEB journey

Krystal Biotech is committed to providing resources to help you learn more about DEB and talk with your healthcare provider about diagnosis and testing.

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Call 1-844-5-KRYSTAL for Krystal Connect personalized support

Whether you just want to keep in touch or need additional support, Krystal Connect is here to help.

When you contact and enroll in Krystal Connect, you will be connected to a Patient Access Liaison (PAL). Your PAL can help you and your family learn more about DEB by:

  • Connecting you with helpful tools and resources about DEB
  • Providing education about family trees, inheritance, and genetic testing for you or family members
  • Providing educational opportunities via one-on-one, family, or group meetings

Downloadable resource for you

DEB Patient Brochure

Information about DEB for you and your family to download and save

Educational programs on DEB designed for you

Krystal Biotech offers educational programs to help you learn more about DEB from medical experts and members of the DEB community.

Register for one of our upcoming events here—where you’ll find specific information about our upcoming events and how to participate.

See stories about living with DEB

Abby & Valerie's Story
Jenny's Story

Support and advocacy for DEB

You are not alone on your DEB journey.

There are a number of organizations that provide support to individuals and families living with DEB. Here are some that might be a fit for you:

Recognizing DEB spotlight icon

Recognizing DEB

A missed DEB diagnosis can happen if doctors only look at symptoms alone

Accurate diagnosis matters spotlight icon

Accurate Diagnosis Matters

DEB can have serious risks and complications, and accurate diagnosis is the first step to address them

Icon representing a clearer future with information and resources for DEB

The Value of Accurately Knowing

An accurate DEB diagnosis can make a difference in how you live with DEB, from understanding the future to receiving accurate care

Not all blisters are the same. Could yours be DEB? Ask your doctor about a genetic test for DEB